Targeted Navigation in Hepatocellular Carcinoma (HCC)

Trial number:
NCT06260943
Trial phase:
N/A
Study type:
Any
Overall status:
Recruiting

Study start date

May, 2024

Scientific title

Targeted Navigation to Achieve Health Equity: Increasing Access to Care, Patient Engagement and Research Participation

Summary

The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.

HCC Patients:

Enrolled or eligible for enrollment in Unified Prospective Registry and Biorepository of Patients with Chronic Liver Disease or Hepatobiliary Cancers Including Hepatocellular Carcinoma (HCC) and Cholangiocarcinoma.Diagnosis of hepatocellular carcinoma, confirmed by clinical chart review and International Classification of Diseases, Tenth Revision (ICD-10) C22.0. Adults, age 18 or older Able to provide informed consent

All other interviewees:

Advocates who will self-identify as having had HCC.Others who self-identify as either a caregiver or support person of an HCC patient.

Physicians/Licensed Independent Practitioners, Social Workers, Nurse Navigators, and Research Coordinators will all self-identify as being involved in the care of HCC patients.

Study design

Primary purpose: Supportive Care, Allocation: N/A, Intervention model: Single Group Assignment, Masking: None (Open Label),

Conditions

Hepatocellular Carcinoma, Cholangiocarcinoma, Hepatobiliary Cancer

Other study ID numbers

20221220; NCI-2024-00566

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